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3.25.2014

a ghostly hello

My life has been long, long hours at work and driving to and from therapy appointments. When I'm home, I collapse on the couch and only get up when I drag myself to bed. 

I've missed so many posts, so many comments. I try to write, to draw, to paint, and I just end up frustrated at myself. My mind is full of cotton. I seem to be caught in a creative black hole. 

But I miss you. All of you. I am so behind in your blogs, and right now I don't think I can catch up. But I really want to know how you're doing. Are you ok? What are you thinking about right now? What are you happy about, frustrated about, angry about, sad about? 

I think about you guys a lot. Even when I'm not writing. Thank you for all the comments. I'm sorry I'm such a ghost.

Love,

Kay

3.12.2014

it's only a change of time

I had a dream last night
I dreamt that I was swimming
and the stars up above
directionless and drifting
somewhere in the dark
were the sirens and the thunder
and around me as I swam
the drifters who’d gone under

time, love
time, love
time, love
it’s only a change of time


When I was ten years old, I slipped into the middle of the woods and begged God to let my Grandma live. The early spring snow was wet and slowly seeped into my battered second-hand boots as I pleaded, offering everything I could think of in exchange. But God was silent, and eventually my desperate words faltered. Cancer had been a part of my vocabulary for a year now, but it had just been a word. It was the reason Grandma was tired. The reason she had to go home early. The reason we couldn't visit as often. The reason we couldn't see her if we had a cold. It had not occurred to me that my Grandma was going to die, but now surrounded by the dripping trees and divine silence, it was suddenly, painfully clear. I stayed there until the sun began to set, alone, snow soaking into my jeans, my grief mixing with the sharp taste of pine.

I had a dream last night
and rusting far below me
battered hulls and broken hardships
leviathan and lonely
I was thirsty so I drank
and though it was salt water
there was something ‘bout the way
it tasted so familiar

time, love
time, love
time, love
it’s only a change of time


I knew it when my parents sat us all at our worn dining room table in the early morning. I knew it when my mother stared silently at the floor. I knew it when my father stood, calmly grave. I let three tears fall onto the table, but that was all.

the black clouds I’m hanging
this anchor I’m dragging
the sails of memory rip open in silence
we cut through the lowlands
all hands through the saltlands
the white caps of memory
confusing and violent

We stood beside the open grave, just family. A man was speaking, a Bible in hand, but I couldn't stop staring at the coffin, sacred and elegant. I just couldn't picture her inside. That was not her. She was laughter and the crumbly sweetness of pound cake and the soft clucking of chickens as she gently placed a warm, freshly laid egg in my small hand. I fidgeted, stared at the sky, watched the cars drive by. When it was finally over, I raced my cousins back to the car. I didn't care if I won, I just wanted to get away from the deafening silence of that wooden box. I put my hand through the open window of my Grandpa's car to unlock the door, only to start when he yelled out sharply for me to stop. He didn't want the car alarm to go off, but he had never yelled at me like that before. I sat silently as we drove from the cemetery to the church and tried to make sense of the tumultuous fear playing round in my head.  

The organ played mournful tunes for what felt like hours before the service even started. All around me were the sounds of people crying. My family. People I barely recognized. People I didn't know at all. I clenched my fists so tightly that my nails bit into my palms. Throughout the entire service I sat that way, stubbornly stoic, refusing to cry.

time, love
time, love
time, love
it’s only a change of
time, love
time, love
time, love
it’s only a change of time


At the reception, we children ran like wild things around the small room. It was a maze of legs adorned in sleek pleated slacks, leather dress shoes, tan colored pantyhose, and sensible heels. We yelled and laughed manically and stole an entire bowl of sugar cubes for my cousin's horse, but no one said a word. We were the grandchildren of the deceased, untouchable.

Afterwards, it was easiest to pretend she had never existed. The memory of life with her was more bitter than sweet. It was too hard to remember her, always so full of love. It was too hard to remember my mother laughing, to remember her face lit up with joy. It was too hard to remember that my Grandpa hadn't always been silent and stooped with grief, that my mother hadn't always been raging with hate.

But she haunts me still. Sometimes she is well, laughing, warm with life. Sometimes she is skeletal and frail with sunken eyes and cheeks. Her ghost held my hand through the deepest valleys of depression, sometimes more as an anchor than a guide. She is ever present, and I do not know which one of us won't let go. 

Sometimes I get lost imagining how things could have been different if she had lived. It's a dangerous road that leads further and further into nowhere. So I have to remind myself over and over again that this is what is true:

I only had her for a short time, but in that time I never doubted that she loved me. 

And I will see her again. I believe that with all my heart.

it’s only a change of
time, love
time, love
time, love
it’s only a change of
time, love
time, love
time, love

it’s only a change of time



To Millie, my Grandma, with love.


Song lyrics from "Change of Time" by Josh Ritter

3.06.2014

insane (adjective)

A deranged state of the mind; in a state of mind that prevents normal perception, behavior, or social interaction; seriously mentally ill.

My life has become a list of skills. Skills I used. Skills I didn't use. Skills I thought about, but didn't want to use. Skills I tried to use, but didn't help.

This is DBT. 

DBT is all about skills. 

I am crabbily scribbling down answers to our homework assignment. The Mr. is passed out next to me. It's late. I'm tired. I have three worksheets to fill out, and I have two choices: write down the truth or what I know they want me to say.

I choose the truth.

This skill is called Check The Facts. It helps regulate your emotions. 

"Every emotion you have is valid, but not every emotion you have is justified." The therapist says.

This is where checking the facts comes in. If you are angry, you are supposed to stop and ask yourself WHY. What prompted it? Then you check the facts. Here, list them on this sheet of paper. Now, is this a reasonable reaction to this situation? 

It sounds simple, right? I can see that thought on the therapist's face as she smiles at us. This is simple. Obvious.

Sure.

I write down my facts. I ate too much food. I gained weight. I am a worthless piece of shit.

So my anger is justified, as is my decision to restrict the following day.

In group I am politely corrected. Only my weight gain is a fact. The other two are judgments. My emotion is unjustified. 

"They are all facts to me." I say defiantly. 

"That is your eating disordered mind talking."

"But I believe them."

We go in a circle until we end here: my facts are just wrong. And that's that.

The things my brain tells me to be true and real are not. And a small part of me knows that. I know that I believe what is untrue, but I also wholeheartedly believe what's untrue is true.

Does this not sound eerily similar to the definition of insanity?

Do you know how it feels to know you can't trust your own brain? Do you know how it feels to be told that you can't trust your own brain? Who then can you trust? Anyone? No one? What is the point, then? To go on listening to your broken brain until it leads you off a cliff? To trust the people telling you differently and blindly follow their every direction? Do you feel the walls of reality crashing around your ankles?

Molly tries to lure me into naming my eating disorder with Harry Potter. "What if you called it Voldemort?" She says.

I don't say anything.

"What are other good names from Harry Potter?" She looks up, thinking, waiting.

I don't offer any.

Stop dividing me up into pieces. I want to scream. Stop telling me that this piece is good and this one is bad and this one is wrong and this one is right because I am left believing that something is both black and white at the same time and I feel like I am losing my fucking mind.

I am not very good at checking the facts. Apparently.

There are six women in my group and one teenage boy. We are all different ages, sizes, and shapes. I have seen them cry. I have seen them yell. I have seen them get up and abruptly leave the room. I have seen them happy. I have seen them fucking pissed.

And I've come to care about each and every one of them.

At one of my first appointments with Molly she told me that the first thing she realized about people with eating disorders is that they're all really smart. Almost across the board.

I hadn't really thought about it before, but once I did, I realized how absolutely true it is. The people in my group. The writers of the blogs I've read. The people who comment here. I have seen so much creativity and wit and intelligence in people labeled as mentally ill. 

After we were dismissed, one of the girls in my group caught up with me, and we ended up talking in the hallway for forty-five minutes. Surrounded by people I don't know, I can be painfully shy, and this was the first one-on-one conversation I've really had. And it was so good. When someone understands a tangled, messy part of you that most people don't, it's like finally surfacing from underwater. 

Maybe I am insane and broken and disordered, but I'm not the only one. And that one conversation helped more than the three and a half hours of therapy I had today.

2.26.2014

til the last moon droops

Bill texts me in the darkness before dawn.

"a piece of a poem written by arthur symons." He writes,

"unresting water, there shall never be rest
til the last moon droops and the last tide fails.
and the fire of the end begins to burn in the west
and the heart shall be weary and wonder and cry like the sea
all life crying without avail
as the water all night long
is crying to me."

...


"Life carries on." They say. But it doesn't really. Not for some.

It is the darkest, most malicious winter I have known in my twenty-seven years. On the eve of March, we are still buried in mountains of snow, still bracing against dangerously cold winds as the temperature drops and drops again.

There have been two suicides this past week that I know of.

I didn't know either of them personally, but I know it could have been me.

...


"We never talk about the hospital." Molly says, out of the blue. "About your suicide attempt."

I pause, but then I shrug. "I've talked about it so much, it doesn't really bother me anymore."

She looks skeptical, so I start to talk, to prove her wrong. But for the first time in five months...I find myself lost for words. 

"What are you feeling right now?" She asks gently. She's leaning forward in her chair watching me struggle, and I suddenly feel fragile. 

"....like I might cry." I finally mumble.

"You can cry, you know. It's ok to cry." She says.

"I don't want to." 

So I don't.

...

I get in trouble at work. It's over a small thing, in my opinion, but my boss thinks otherwise. She surprises me one morning with a guilt trip so thick, I am stunned. She slaps it on, layer after layer, without giving me a chance to breathe. 

I should have defended myself, but I didn't. I just slowly caved in.

Stupid. You stupid fucking idiot. I tell my watery reflection in the bathroom mirror. I hate you. Everyone hates you. Why don't you just die already? I wish you would just die.

I stumble through the rest of the day, a defeated, hollow shell. I try to focus on my work, but I just keep thinking about how pointless it was to go on living. I thought I'd mostly clawed my way out of that dark hole, but one little conversation shoved me right back in. 

...but maybe not all the way.

Because that night, I tell the Mr. I tell him. I speak the words out loud. And he doesn't panic. He just holds me and makes me say all of the things I love in life until I am completely annoyed, but smiling at the same time. 

The thoughts are still there, my own furious, damning voice echoing around in my head, but they are a little easier to ignore.

...

I try to start a new blog. I am spurred by a sudden passion to tell my story as myself. To show the people who know me who I really am. To be an advocate for people with mental illnesses. To maybe give someone else the courage to be vulnerable.

I throw myself into the design. I am excited. So excited that I struggle willingly through lines of code that read like Chinese to my brain.

Then it is all designed, beautiful, just the way I want it. I open a new post, the first post, and I stare at it.

The cursor blinks blinks blinks blinks.

I write a paragraph. Then two. I start over. The cursor blinks. I get up, make some tea. I come back. I write one sentence. Then I delete it.

A week later, the blog still sits empty, void. I don't know how to fill it with honesty, with the ugly things inside my head. They won't get it. They won't understand. I thought I was brave, but I just feel....fragile.

...

"...all life crying without avail
as the water all night long
is crying to me.

hope it rings true in your dark, porcelain heart, jasmine."

I read Bill's text three times. Then I lay back down, next to the Mr. who drowsily throws a warm arm around me. I fall asleep again listening to the crying of the sea.

I hope you have people in your life who understand. I hope you know that if you need someone who understands, I am here in my dusty, cluttered little corner willing to try.

2.05.2014

of drama

"Is there anything I can do to help you get back on track?" My dietitian asks.

I smile politely and shake my head as though I'm declining sugar in my tea.

"Your dietitian spoke with me. She's worried about you. I am too." Molly is leaning forward and I am purposefully not looking at her. I know this trick. I know what she's doing.

I want to throw things.

I stopped following my meal plan.

If I hadn't said anything about it, if I'd just lied, I know all this drama wouldn't have happened. But I told her, my dietitian. Partly out of spite. Partly because I wanted her to know that I was in control.

I didn't expect the drama.

It was as if I told them that I'd stopped eating entirely. That I was never going to eat again. And so began the guilt trips, the scare tactics, the emotional manipulation.

When I look at them now, all I can see is my mother.

I want to be done with this. I was told to go to treatment by a team of people in white lab coats, so I did. I went because I was just a small broken person in turquoise scrubs, all my secrets revealed. I went because it was expected. I went because all the people in my life looked so worried. It wasn't for me. It was for them. And I'll admit, I was curious. But I am so done with it now. With all of it. I can't trust them anymore. I have no desire to change. I never have. I am the wolf in sheep's clothing, and I am so tired of saying what I know I'm supposed to say.

Anger constantly lurks around my rib cage. I find myself clenching my fists to keep from exploding at my boss just for talking. My family wants to know how I'm doing. They want a progress report. Concrete numbers marking my ascent into sanity. They love me. I know that. But the phone calls and the emails slowly pile up.

Get better. Get better. Get better. Get better.

They want to know how long I'll be in therapy, how long I'll have to take medication. When? When? When? And throughout it all I can hear what they're not saying and the pressure is crushing me.

Get better. Get better. Get better. GET BETTER.

It makes me want to scream.

I've never been an angry person. I don't like angry people. Including myself.

My dreams come in strange flashes as though someone is flipping quickly through a slideshow of pictures. It is a barrage of light and dark and emotion. Bits and pieces of normal life intermixed with the strange, the terrifying, the horrifying, the heart-wrenching. Throughout the day I find myself suddenly perplexed about reality. What is real and what is dream? I try to sort through the pictures, but they are scattered across the floor in a jumbled mess.

I am tired. I am crackling with irritation. I am frustrated. I don't want to go to work. I don't want to go to treatment. I feel like I am losing my mind. I just want everyone to leave me alone.

Even writing is difficult. It's like trudging through knee deep mud. I've closed countless blank pages before I managed to spit these jumbled words out.

I'm afraid I'm not a very pleasant person these days.

1.30.2014

a brief escape

It is early, and I am tired. There is no noise, but for clomping snow boots, zippers, and yawns. I am trying to breathe deep and mindfully, but I can't find my mittens.

The cold steals my breath as I step outside, but for once I almost laugh. Exhaust clouds billow across the freeway. The skyline is beautiful in the morning.

We slowly merge like sleepy bees up to the curb. I strip off my coat and boots and mittens, and I kiss him goodbye. The cold chases me as I run to the safety of the big glass doors.

I find my seat on the aisle. That one. The one next to a frowning middle aged man.

"Tight space." Is all he remarks. His knees are pressing against the seat in front of him.

I fit nicely into my small space, and smile politely.

A couple hours later, I glance out the window and spots dance in front of my startled eyes. How long has it been since I've really seen the sun?

There are palm trees growing out of the ground. I stare at them through the glass. Palm trees! Growing there in the ground. Real palm trees. And the sun! The sun is brilliant. I can't wait to get outside.

My friend, one of my best friends, is waiting for me on the other side of the secured doors. Amused bystanders watch our enthusiastic reunion, and I am truly happy. We drive with the windows down, and I am overwhelmed by the desert. She grew up in the sun, surrounded by cacti, but this world is brand new to me. Around us people move and talk and shop and scold their children and are entirely unimpressed by their surroundings. I have to resist the urge to shake them. 

"Don't ever take the sun for granted!" I'd shout, like a crazy person.

It is a brief trip. Fifty-two hours in paradise. We laugh and talk and talk and talk some more. She shows me the past pieces of her life. High schools and the house where she grew up. We walk into a tattoo parlor and walk out with new matching tattoos. We eat food and drink beer and sit in the sunshine and play with her cat and dog and watch movies and talk over a bonfire on the patio at night. 

It is perfect.

I have a middle seat on the return plane ride. The woman to my right explains twice that the sauce from her burrito has leaked. She dozes off halfway through the flight, but startles awake to tell me about her parents' thirteen year old golden retriever who likes rides on the ATV. The woman to my left is dignified and calm with her paperback book. She looks at me over her glasses, and I feel like a specimen on display. I buy a package of peanut m&m's during the flight, and I eat the entire thing.

It is not quite so cold when I step outside, but I run anyways. The Mr. is waiting, and his smile warms the entire car.

The next morning, reality is a whirling snowstorm, windblown drifts up to my knees, and a crawling commute on icy roads. I leave work early to attend DBT, but the lines of cars and the way my car slides as it plows through the snow chokes me. I take the exit for my house instead. I can't face the cold, the snow, the icy roads. Not now. Not today. 

Today it's hard to believe that the sun is still shining anywhere.

1.22.2014

in which things go back to being not good

Her name is Valentina.

She can't be much older than I am. She looks like she should be seen between the pages of a magazine or on billboards or strutting down a catwalk. Definitely not sitting in this small, plain office. When she speaks, I find myself listening to her accent instead of her words. I can't quite place it. Russian maybe? Italian?

She's not a Model though. She's my new Psychiatrist.

I expect to dislike her, to distrust her, but then I don't. She listens. She radiates calm. She speaks intelligently. I realize I like her after only a few minutes. So when I speak, I tell the truth.

....

Despite the cold, it has somehow managed to snow again. The world is coated in giant, fluffy flakes like a child sprinkled pretend snow over a playhouse. The snowflakes are so light that they fly in all directions when I brush them off my car, covering me in sparkling snow. 

....

I met my lunch goal 5 out of 7 days.

My dietitian is very pleased. 

I am making an effort to be pleasant. Turning over a new leaf.

"This is the most I've ever seen you smile." She says.

She takes my weight. I wait for her to tell me what it was so we can talk about it. Like she promised.

But she doesn't. 

Instead she asks me if I'll stop weighing myself at home.

Again.

I stop smiling.

....


All of this is supposed to make me feel better, but it's not. I don't think the program is broken, I think I am. Therapists and dietitians all operate under the assumption that you want to get better. 

And I am still defining "better" wrong.

Or right?

I don't know.

I hate myself right now. I hate myself more than I have in months. I hate how I feel. I hate how I look. I hate the numbers on the scale. I hate my dietitians smile. I hate it when Molly talks about my "ED voice." I hate the diary card I'm supposed to fill out for DBT that monitors how I feel. 

I feel awful.

Last night I couldn't take it anymore. So I looked myself in the eye in the mirror and spewed out all the horrible, hateful thoughts I've been having about her, the girl in the reflection. I took my pills like I was supposed to, but they didn't stop me from slamming my arms into the door frame again. 

The pain worked better than the pills, anyways.

I don't want to do this. I don't think I can.